Wednesday, July 16, 2025

No symptoms. Normal hormone levels. And then, one scan changed my life.

 

Dr. Natasha Das,

Consultant, Medical Communications

A papillary thyroid carcinoma patient

On the 16th of July, I mark one year since a diagnosis that shook my near and dear ones. Until then, I was a doctor and a medical communications professional leading a normal ‘healthy’ life and conducting outreach programs and training people how to do a self-examination of the breast and the oral cavity for early detection of cancer.  

I have always believed in the power of early detection. Now, I have lived it.

The clue I missed – and my friends did not

A year ago, a friend, who is also a doctor, noticed something I hadn’t – a slight swelling on my neck. I had no symptoms. No pain. No voice changes. No trouble swallowing. And like many patients, I could have dismissed the swelling as harmless, especially in the absence of symptoms. But as a doctor, I knew better.

It turned out later, my thyroid hormone levels also were within normal limits. All that I had was just a visible lump that I had not known of till then.  

A few weeks later, another friend nudged me to get a scan to check if it was only a cyst (a fluid filled sac) or a solid tumor. 

The clinical examination

Next, I got myself clinically examined by a physician friend. She examined the swelling and said it felt like a cyst and there may not be much to worry. She insisted that in spite of the normal hormone levels, a swelling is an abnormality. She advised me to get an ultrasound scan followed by a fine-needle aspiration cytology (FNAC) to be sure it was a benign cyst.

The ultrasound that revealed a silent story in the other lobe

I went in expecting the scan to confirm a benign nodule in the area of the swelling. Instead, the ultrasonologist noticed something entirely different.

He didn’t just scan the obvious lump. He thoroughly examined the entire neck. His attention to detail changed the course of my care.

Yes, there was a cyst in the right lobe of the thyroid that did seem to be benign. But the ultrasonologist found foci of microcalcification in the left lobe of the thyroid. Microcalcifications are detected by the ultrasound as small, bright spots – a red flag for thyroid cancer. The ultrasonologist insisted that I get an FNAC from the left side rather than the right.

I cannot emphasize this enough. It was his skill and thorough examination that brought the true picture to light.

A quick and conclusive FNAC report

While the tiny bright spots (less than a mm in diameter) detected by ultrasound were a strong indication of thyroid cancer, they could also have been due to benign conditions such as Hashimoto’s thyroiditis. Because of its association with cancer, since microcalcifications were identified, a thorough evaluation was crucial.

Although I was advised to get an FNAC done with a sample from the left lobe, there was no lump on the left that could be seen or felt. The pathologist therefore, went in for an ultrasound-guided FNAC. The ultrasound was used to locate the position of the microcalcifications. A fine needle was used to withdraw cells from there. These cells were then examined under the microscope to determine if there were any cancerous cells.

It was the FNAC that confirmed the diagnosis of papillary thyroid cancer.

Ultrasound to detect the spread of the cancer

Once the diagnosis was confirmed, a surgery was planned. But before that, the cancer surgeon needed to know about the spread of the cancer.

He advised another ultrasound of the neck. This time, with the cancer already diagnosed, the ultrasound was used to assess the lymph nodes in the neck for any signs of metastasis or spread of cancer.

When the cells in the lymph nodes die, the lymph nodes become what doctors call ‘necrotic’. Necrotic lymph nodes often appear darker on the ultrasound monitor.

This second ultrasound of my neck revealed several necrotic lymph nodes indicating spread of the cancer.

CE CT scan to rule out the rare possibility of abdominal or pelvic mass

In rare cases, follicular or papillary thyroid cancers have presented as pelvic masses or as asymptomatic pelvic bone metastases.

I also underwent a contrast-enhanced computed tomography (CE CT) scan of the abdomen and pelvis to rule out any abnormality in these areas.

Surgery and biopsy that helped determine the staging of the cancer

Since one lobe of my thyroid had a large visible cystic swelling and the other lobe had cancer, the surgeon decided to remove the thyroid gland completely.

As ultrasound had revealed necrotic lymph nodes in the neck, the surgeon decided to clean the neck and remove the nearby lymph nodes.

The surgeon also decided to remove one of the four parathyroid glands as it was too close to the affected area and might harbor cancer cells.

While necrosis of lymph nodes on an ultrasound often points to spread of cancer, it is important to consider other possibilities such as tuberculosis, fungal infections and other chronic inflammatory disease.

The removed thyroid gland, parathyroid and neck lymph nodes were sent for biopsy. There were multiple cancerous nodules in the thyroid and the largest one had a diameter of over 2 cm. The cancer was confined to the thyroid. It had spread to four of the neck lymph nodes but there was no distant spread. The cancer was therefore, staged at T2N1M0. Since I was less than 55 y old at diagnosis, this was considered as stage I papillary thyroid cancer.

Adjuvant therapy after the surgery

After the surgery, I underwent adjuvant nuclear therapy in the form of radioactive iodine (RAI) therapy.

The RAI therapy ensured that any remnant thyroid tissue or microscopic disease was treated. It also completed the active phase of my treatment.

A follow-up scan after the RAI therapy ensured that all thyroid cells in my body had been killed.

A pill each morning – that’s all it takes to keep me going

Once the RAI therapy was done, it meant all my thyroid cells were killed – even that microscopic amount that have been left behind after the surgery.

I need thyroid hormones for overall functioning of my body. As my body no longer produces these hormones, I have been put on thyroid hormone replacement therapy.

This means every morning, I get up and take a pill that gives me enough thyroid hormones to allow my body to work to its optimum ability.

A final word – the power of looking closer and paying attention

When I reflect today, 1 year after the diagnosis, on what saved me – I believe it wasn’t just a machine and a test. It was the people behind them who looked closer and paid attention.

A friend who saw what I didn’t.  The ultrasonologist who paid attention to the left side too when the swelling was only on the right side. The pathologist who confirmed the diagnosis. The ultrasonologist who found the necrosed lymph nodes. The surgeon who carefully removed my thyroid gland without any damage to the nerve to my voice box, who removed the neck lymph nodes carefully and sent it for biopsy. The pathologists who did the biopsy and confirmed that the spread was limited only to a few nearby lymph nodes.

My case is a reminder that medicine is as much about vigilance and intuition as it is about technology.

So, if you—or someone you care about—has a neck swelling, don’t ignore it. Even if it is painless. Even if your lab tests are normal. Even if you feel fine. Ask your doctor about an ultrasound. Make sure the scan is detailed and done by someone experienced in thyroid imaging. And follow through if something looks suspicious.

Because early detection doesn’t just improve outcomes. Sometimes, as in my case, it changes everything.

 

P.S.

One year after the diagnosis, I am doing well. 

My last whole-body scan had shown no remnant thyroid cancer cells anywhere in my body.

As a panel moderator at the recently concluded DIA Medical Writing Conference 2025

Grateful to these people in my cancer journey

Dr. Sanjusmita Tripathy, Dr. Preeti Srivastava, Dr. Sharmistha Sarangi, Dr. Biswajit Mishra, Dr. Sandeep Mohanty, Dr. Ranjan Mohanty, Dr. Pradyumna Kumar Sahoo, Dr. Manas Ranjan Baisakh, Dr. Rabi Narayan Mallick, Dr. Manoranjan Mohapatra, Dr. Saroj Kumar Sahu, Dr. Tushar Mohapatra, Dr. Saurendra Das, Ar. Santrupthy Das, Mr. Animesh Das, Dr. Bibhupada Mohanty, Mrs. Yashodhara Das, Mrs. Alaka Das, Mr. Nilolohit Mohanty, Mrs. Mandakini Mohanty, Ms. Swetapadma Acharya, Dr. Purvish Parikh, Dr. Pratap K. Das, Dr. Ghanashyam Biswas, Dr. Soumya Surath Panda, Mr. Ravi Shankar Sharma, Mr. Debakanta Kar and many others.

Also, Zulie bhai (Late Dr. ZH Khan) who always encouraged me to spread awareness for early detection of cancer.

When you have cancer, you do not travel alone. And that’s what makes all the difference. I share my story now so others will listen sooner—to their bodies, to their instincts, and to those who care enough to speak up. Because sometimes, one scan and one set of careful eyes is all it takes to change the ending.


2 comments:

  1. Dear Natasha,
    I as your batchmate salute your positive attitude towards life. Wish you a healthy life.
    Your case is a bright example of the doctors perspective towards a disease which no AI could have detected.

    ReplyDelete
    Replies
    1. Thank you, dear. I am truly amazed at what AI can do. And it is still developing at a faster rate than we know.

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